These examples demonstrate how neuroscience networks described in chapter 3 of the NSF can improve services for people with long-term conditions. *An asterisk in an example indicates that its approach could be adapted for other long-term conditions.
Examples from the Action on Neurology pilots on making changes to local services.
The network has developed a number of strategies for co-ordinating and enhancing services for people with acquired brain injuries across the county. They have a number of tools, which would help similar collaborative initiatives.
The network was first developed as an initiative led by individuals with Parkinson’s disease to build capacity for local provision of specialist Parkinson’s disease services. A group of allied health professionals with specialist interests are key stakeholders in the network.
The Forum is a collaborative initiative with the Alzheimer’s Society (London region). The forum meets twice yearly and is open to professionals and families across London concerned with the needs of younger people with dementia.
The Forum is an MS Society initiative in Newcastle to improve services for people with MS that brings together all regional charities, health and social care providers.
The SCR is a network for cognitive rehabilitation therapists and others with an interest in the provision of cognitive rehabilitation to people with acquired brain injury. It provides the opportunity for international networking through annual conferences, an annual News Bulletin and the publication of a directory of members. It also encourages members to carry out research and publish their findings. It has developed a process for certification of cognitive rehabilitation providers (CPCRT).
The team is a regional peer support group of seven Parkinson’s disease nurse specialists. The team has collaborated on some large clinical projects, (e.g. clinical management protocols), and their knowledge and views are often sought on clinical and research issues.
The Forum has operated along the lines of a multidisciplinary clinical network group. It has developed a variety of resources, including clinical protocols for the intrathecal baclofen service, service definitions and patient information leaflets.